(TRENTON) – Legislation by Assemblyman Angel Fuentes (D-Camden/Gloucester) to establish a bill of rights for the parents and siblings of persons with developmental abilities was approved today by the General Assembly.
“Parents and siblings of individuals with disabilities are deeply involved in the decisions that affect the health and well-being of their loved-one,” said Assemblyman Fuentes. “It is vital that they receive the support and resources needed for them to adequately make informed, meaningful decisions as they navigate the healthcare system.”
The bill states that an authorized family member of a person with a developmental disability shall have the right:
• To be treated with consideration and respect;
• To receive information necessary on a need-to-know basis to make informed decisions, when appropriate, about the care of a person;
• To receive information and correspondence in writing;
• To receive return phone calls within a reasonable time frame;
• To be given clear, up-to-date, understandable and honest information about the system of services for persons with developmental disabilities
• To be given clear information about the authorized family member’s status within the service system and what the parent can reasonably expect from it currently and in the future;
• To have meaningful participation and input into, ongoing review of, and involvement with, the person’s plan of care, including, but not limited to, an individual family service plan;
• To have a method of recourse if the authorized family member feels the person’s plan of care is not being implemented or the person is not receiving adequate care appropriate to the person’s need;
• To be free from retaliation if a complaint is made; and
• To be advised in writing of any laws, rules or regulations that apply to a parent’s ability to access information or participate in decisions about a person’s life, including by not limited to guardianship issues and access to records, reports, plans of care and other pertinent information.
“When it comes to individuals with disabilities, family members should be treated as partners in care and afforded the proper respect that role demands,” added Assemblyman Fuentes. “With this Bill of Rights, we are paving the way for the health care industry to recognize that role and make the appropriate changes in the way they coordinate with these individuals.”
The Division of Developmental Disabilities in the Department of Human Services would be required to prepare and distribute the listing to every case manager of a person with a developmental disability. The listing also must be posted in a conspicuous place in each office of the Divisions of Developmental Disabilities and Disabilities Services in the state and in each of the state developmental centers.
The man reported to be at the center of a controversy over lane closures on the George Washington Bridge is resigning from the Port Authority, according to published reports.Read More >
Lance looking to ensure CD 3 ‘remains in Republican hands’ LAWRENCEVILLE – U.S. Rep. Leonard Lance (R-7) was no stranger on the campaign trail for Steve Lonegan. When the former Bogota mayor made a bid for the U.S. Senate, Lance traveled outside of his district to celebrate Lonegan’s primary...
By Christopher Durkin Many New Jersey lawmakers have fought to make it easier to vote. And there has been considerable progress in terms of voter access and information. Voter registration has been made easier, with forms available online that... Read More >
"During my lifetime I have dedicated myself to this struggle of the African people. I have fought against white domination, and I have fought against black domination. I have cherished the ideal of a democratic and free society in which all persons live together in harmony and with equal opportunities. It is an ideal which I hope to live for and to achieve. But if needs be, it is an ideal for which I am prepared to die."- Nelson Mandela
Press releases are submitted by PolitickerNJ users, not by staff. They do not represent the viewpoint of PolitickerNJ.com.